"There were days when I could not even hold my baby close because of the tubes and machines around him. I have prayed every single day since then. All we want now is for Nilay to get this surgery and finally live without struggling for every breath."
Eleven-month-old Nilay S R, son of Sinoob R and Rajisha P from Kozhikode, Keralam, has been fighting for his life since he was just two months old. Nilay was diagnosed with Crouzon syndrome, a rare condition that affects the shape of the skull and face, along with failure to thrive caused by repeated respiratory infections that have kept him in and out of hospitals since infancy.
Amrita Institute of Medical Sciences, Keralam
Nilay S R
403/ 404, Sai Arpan, near P.G. Vora school, Joggers Park Rd, Mira Road, Maharashtra 401107
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